Between a Rock and a Hard Place: The Challenges of Caregiving During a Pandemic for Parkinson's Family Care Partners.

Aim: To understand Parkinson's Disease (PD) care partners' a) specific challenges that led to worsening strain and b) their suggestions for supports to help them during the ongoing pandemic. Method: Using a qualitative descriptive design, semi-structured interviews with family care partners (n = 19) were completed. Participants were recruited from 10 sites across the United States that varied in size, demographics of patient population served, and geographic location (urban, suburban, rural). Interviews were audio-recorded, de-identified, transcribed verbatim, and coded in a phased manner. The research team analyzed the data and identified themes. Results: During the pandemic, the already difficult task of caregiving was made worse by having to choose between poor options. Five themes exemplified PD care partner experiences: (1) Managing risks and benefits of medical care in settings outside the home vs meeting these needs at home; (2) Struggling to maintain employment benefits with the costs of care and risks of bringing in outside caregivers; (3) Struggling to balance caregiving and self-care; (4) Struggling to be supportive and taking on new caregiving roles in the face of less support services; and (5) Wanting social connections and feeling pressured to maintain isolation. Care partners wanted timely access to, and guidance from healthcare teams to help them. Conclusions: Care partner burden was worsened by lack of guidance when confronted by choices that could lead to negative outcomes. Movement disorder and palliative care providers may be able to alleviate some care partner burden through building systems for timely access and guidance.

TÜKETÍMDE TOPLUMSAL CÍNSÍYET: KÜRESEL BÍR SALGIN (COVID-19) SONRASI YAŞANAN DEĞÍŞÍMLER

Genellikle insanlar doğumdan itibaren toplumsal cinsiyet rollerine maruz kalarak ilerleyen yaşantılarında bu roller doğrultusunda tüketim tercihlerini ve kararlarını belirlemeye çalışmaktadır. Toplumdan topluma değişen skonusu bu roller, kişilerin vereceği tüketim kararlarında etkili bir pozisyonda yer almasını sağlayabilir. Ancak daha önce yapılmış çalışmalar, küresel bir şokun tüketimler üzerinde bireylerin benzer tüketim tercihlerinde bulunulduğunu göstermiştir. Bu bağlamda çalışmanın amacı Covid-19 salgını ile birlikte toplumun cinsiyetlere yüklediği rollere ait tüketim kalıplarının genç yetişkinler üzerindeki değişiminin ne şekilde yaşandığını ortaya koymayı amaçlamaktadır. Araştırma yöntemi olarak nitel araştırma tekniklerinden derinlemesine mülakat tekniği kullanılmıştır. Çalışma kapsamında Muğla Sıtkı Koçman Üniversitesi Íktisadi ve Ídari Bilimler Fakültesi bünyesinde yer alan bölümlerdeki (işletme, iktisat, kamu yönetimi, siyaset bilimleri ve uluslararası ilişkiler) 40 öğrenci ile bu görüşmeler gerçekleştirilmiştir. Sonuç olarak küresel salgınla birlikte toplumsal cinsiyet algısına aykırı satın alımlar gerçekleştiren katılımcıların son derece az oluşu hatta genç yetişkinlerin büyük çoğunluğunun toplumsal cinsiyete bağlı tüketim yapmadıkları ve buna karşı oldukları ortaya çıkmıştır.Alternate :People are often exposed to gender roles from birth to determine consumption preferences and decisions in line with these roles in their future lives. These roles, which have changed from society to society, can enable people to take an effective position in the decisions of consumption. However, previous studies have shown that individuals have similar consumption preferences on the consumption of a global shock.In this context, the aim of the study is to demonstrate the way that the consumption patterns of the roles that society has put into the gender, along with the Covid-19 epidemic, have changed on young adults. In-depth interview technique from qualitative research techniques was used as a method of research. These meetings were held with 40 students in the departments of the Faculty of Economics and Administrative Sciences (business, economics, public administration, political sciences and international relations) of Muğla Sitki Kocman University within the scope of the study. As a result, participants who have made procurement against the perception of gender with the global outbreak have been extremely low, and even the majority of young adults have shown that they do not consume and oppose gender-dependent consumption.

Social connectedness for socially withdrawn and vulnerable young people's well-being: A qualitative study

Aims: The DisCOVery study sought to better understand the experiences of young people with complex emerging mental health problems over the longer-term social restrictions related to the COVID-19 pandemic. A key focus investigated young people's attitudes and experiences of social connection, and how they perceived this to be related to their mental health and future recovery needs. Method(s): Semi-structured interviews were completed with 16 young people (aged 20 to 25) with pre-existing and complex mental health and social problems, between January to December 2021. N = 6 completed follow up interviews approximately 6 months after their initial interview. Interviews were analysed using thematic analysis. Results and Conclusion(s): Four themes were identified. These centred around a preference for balancing solitude and quality relationships within small social worlds, the complex role of in-person versus online connection and interaction, how the COVID-19 lockdowns were a facilitator of both social connection and disconnection, and the importance of relationships, talking and being listened to for well-being. The findings suggest that in-person, and to some extent online connection, is a key component of well-being, and is an active recovery goal that socially withdrawn young people with complex pre-existing mental health problems would like to work on.

Measurement and Evaluation Challenges in Distance Education: Systematic Review and Qualitative Meta-Synthesis

The challenges experienced in measurement and evaluation during the distance education process among student and instructor groups are discussed in the study. A qualitative meta-synthesis method is used in this research. Twenty studies were included in the meta-synthesis. The challenges experienced by the instructors are program utilization, technological inadequacies, a lack of in-service seminars, online exam diversity, inconsistency between what is measured and what is intended to be measured, interference of other features with the measurement, unsuitability of the measurement tools, academic dishonesty, lack of control over online exam diversity, preparation and grading challenges, infrastructural issues, and a lack or latency of feedback. Challenges experienced by learners include alienation to the electronic environment, language, technological inadequacies, lack of materials, validity-reliability issues, application difficulty, lack of guidance in exams, infrastructural issues, network problems, lack of interest and motivation, anxiety about online exams, and avoidance and resistance to self-disclosure in virtual environments.

A qualitative study exploring how youth use TikTok to learn about mental health and mental health services in British Columbia, Canada

Aims: Youth are increasingly seeking health information through online platforms, such as websites, social media, and online forums. TikTok emerged as a popular platform for disseminating and consuming health information during the COVID-19 pandemic. As such, this study aimed to explore how youth used TikTok to access information about mental health and mental health services during the pandemic. Method(s): Twenty-one interviews were conducted over Zoom with youth (ages 12-24) who lived in British Columbia, Canada and had accessed TikTok for mental health information during the pandemic. Interviews were audio-recorded, transcribed verbatim, and analysed thematically using an inductive approach. Result(s): Youth described TikTok as a safe place to talk about mental health and share personal experiences. This helped youth feel less alone with their struggles and facilitated conversations about mental health with friends, family, and service providers. Participants also described how mental health content on TikTok helped them be more mindful of their own mental health and the different resources and coping strategies available and encouraged them to seek services. For those hesitant or unable to access services, TikTok provided immediate support. Youth appreciated the ease of accessing this information, given the platform's engaging and digestible format (i.e., short videos) and predictive nature of its algorithm. However, participants expressed concerns with the spread of misinformation and the lack of verifiable information on the platform. Conclusion(s): TikTok is as a practical platform to disseminate mental health information to youth. However, efforts to establish strategies for preventing and reporting misinformation are warranted.

Financial Crisis and its Effect on Psychological Well-Being, Health, Satisfaction, and Financial Incapability, A Systematic Review

Background and Objectives: The decline in GDP caused by the global economic recession of 2008 and that caused by the COVID-19 pandemic has resulted in the poor economy of countries around the globe with increased rates of unemployment and adverse job conditions. This systematic review aims to identify the impact of a Financial crisis on Psychological well-being, Life satisfaction, Health Satisfaction, and Financial Incapability. Methodology: The literature included in the review was searched from Feb 1, 2023, to March 26, 2023, by using the PUBMED database as the search engine. Studies discussing the impact of the financial or economic crisis on psychological well-being, Health, Life satisfaction, and Financial Incapabilities published in the English Language were included in this review whereas systematic reviews and metanalysis, case reports, articles published in languages other than English and articles with limited access were excluded. Result(s): Of the 26 articles found eligible for the study, there were 22 Quantitative studies, 2 qualitative studies, and 2 Mixed Method Studies. Most of the articles included in this study discussed the Global Economic crisis caused by COVID-19 and the Global Financial Crisis of 2008. Almost 80% of the studies included in this review discussed psychological well-being and the prevalence of psychological disorders including Depression, Anxiety, Stress, Fear, Loneliness, Burnout, and Suicide whereas the rest of the articles discussed mortality regarding mental disorders. Conclusion(s): Financial crisis or economic recession results in an increased prevalence of common mental disorders affecting psychological well-being by increasing rates of unemployment and adverse job conditions. Policymakers with competitive financial behavior and knowledge are essential elements for psychological well-being and life satisfaction.Copyright © 2023 Lahore Medical And Dental College. All rights reserved.

The Penutupan Sementara Masjid, Surau, Balai Ibadat dan Pembukaan Tempat Awam Lainnya: Analisis Maqasid Syariah dalam Fatwa dan Irsyad Hukum Negara Brunei Darussalam

Negara Brunei Darussalam adalah antara negara Islam yang mengarahkan masjid-masjid, surau-surau dan balai ibadat ditutup sementara apabila kes jangkitan pertama tempatan Covid-19 dilaporkan di negara tersebut pada 3 Mac 2020. Pada 7 Ogos 2021, setelah 457 hari bebas dari kes jangkitan tempatan, Brunei Darussalam ditimpa gelombang kedua covid-19 apabila 5 kes jangkitan tempatan dilaporkan. Oleh sebab itu, kerajaan Negara Brunei Darussalam mengambil keputusan untuk sekali lagi menutup sementara masjid-masjid dan seumpamanya. Dalam tempoh penutupan tersebut, terdapat persoalan di kalangan masyarakat mengapa masjid dan seumpamanya ditutup sedangkan tempat-tempat awam lain seperti kedai dan sebagainya dibuka. Sehubungan itu, objektif pertama kajian ini ialah, menghuraikan adakah terdapat percanggahan dalam penutupan masjid, surau, balai ibadat dan pembukaan tempat-tempat awam lain di Negara Brunei Darussalam dengan Maqasid Syariah. Kedua, menganalisis kewujudan Maqasid Syariah dalam Fatwa Mufti Kerajaan dan Irsyad Hukum Jabatan Mufti Kerajaan Brunei Darussalam yang berkaitan dengan permasalahan tersebut. Kajian ini merupakan kajian kualitatif yang menggunakan metodologi kepustakaan dalam mengumpulkan maklumat daripada buku, jurnal dan sebagainya. Seterusnya analisis kandungan Fatwa Mufti Kerajaan dan Irsyad Hukum dijalankan bagi mengeluarkan dapatan kajian. Antara dapatan kajian ini ialah: Melalui analisis tersebut, tidak ada percanggahan dalam penutupan masjid, surau, balai ibadat dan pembukaan tempat-tempat awam di Negara Brunei Darussalam dengan Maqasid Syariah. Brunei Darussalam is one of the Muslim countries which ordered mosques, suraus and prayer halls to be temporarily closed when the first local cases of Covid-19 was reported on 3rd March 2020. After four hundred and fifty-seven (457) days without any local cases of COVID-19, on 7 August 2021 Brunei Darussalam was hit by a second wave of Covid-19 when five (5) local cases were recorded. Once more, the government ordered the temporary closure of mosques and other similar places. Within the temporary closure, an issue was raised from the public, why mosques are closed while other public places such as shops are opened. As a result, the primary objective of this study is to find whether the temporary closure of mosques, suraus, prayer halls and the opening of other public places contradicts the objectives of the Shariah (Maqasid Shariah). The second objective is to analyze Maqasid Shariah in the Fatwa of the State Mufti and Irshad Hukum of Brunei Darussalam relating to the issue. This study is a qualitative research which relies on library research by collecting data and information from books, journals and other references. Content analysis of the State Mufti's Fatwa and Irshad Hukum is made to get the findings of the research. The results of this study can be concluded that the State Mufti's Fatwa and Irshad Hukum relating to the temporary closure of mosques and the opening of other public places does not contradict Maqasid Shariah.

Microbusinesses' challenges and perceptions in using social media during the COVID-19 crisis

COVID-19 struck the world by storm and has taken its victims along the way. It had also put the whole world on a temporary pause as people tried to manage the virus as best as possible. It has affected people all around the globe and had a huge impact on the global economy. This research will look into how microbusinesses have used social media in order to better face the challenges and changes that came due to the COVID-19 crisis while it will discuss how businesses' perceptions were altered along the way. In particular we are reviewing relevant academic literature surrounding microbusinesses and how they have been affected by COVID-19. The research methods used within this study, and the research results will be stated with reference to primary respondents. We have used a combination of secondary and primary research to develop further understanding of microbusinesses and the impact that COVID-19 has had on organizations in relation to the use of the internet and social media platforms. Limitations of the study will also be identified, and future research areas will be identified.

An organizational analysis of how managers must understand the mental health impact of teleworking during COVID-19 on employees

PurposeThe unimagined workplace disturbance caused by the Coronavirus, also known as COVID-19, has made many organizations virtual or telework driven workplaces, often without the infrastructure and systems in place to support employees facing these sudden workplace changes (Burrell, 2020). Many stressors accompanied this transition, to include lack of childcare, home-school responsibilities and layoffs and business closings. These stressors have perpetuated concerns for the job and financial security for all workers (Fox, 2020), leading some employees to struggle with the work-life balance out of concern for being laid off due to perceived low productivity (Fox, 2020). This study aims to explore those manifestations.Design/methodology/approachThis qualitative research case study explores the impact COVID-19 induced telework has on their job satisfaction, mental well-being and aspects of organizational commitment to fill a gap in the literature concerning emerging workplace dynamics due to COVID-19 for small real estate businesses in the USA.FindingsThe results of this qualitative research case study provide knowledge and information about the need for small businesses to be resourceful and resilient in the way that they support and engage remote workers. This qualitative research case study explores the impact COVID-19-induced telework has on their job satisfaction, mental well-being and aspects of organizational commitment for small real estate businesses. The analysis of current work-life structures through a qualitative lens provides trends among workers to gain a greater perspective of the current accelerators and barriers to worker success in a COVID-19 teleworking environment.Originality/valueThis qualitative research case study explores the impact COVID-19 induced telework has on their job satisfaction, mental well-being and aspects of organizational commitment to fill a gap in the literature concerning emerging workplace dynamics due to COVID-19 for small real estate businesses. The value of this research is that majority of the participants were African-Americans, which represents a participant group that is highly under researched.

Considering the complexities of virtual student mobility as an approach to inclusive internationalisation in the post-pandemic period

The COVID-19 pandemic increased virtual student mobility as an elective choice and an emergency solution. Whether brought on by the pandemic or encouraged as a solution for more sustainable international education programming, virtual student mobility is a complex method for making internationalisation more inclusive. This qualitative research examines 16 Erasmus students' experiences with emergency virtual student mobility during the COVID-19 pandemic, alongside a reflective assessment of two scholar-practitioners. Findings revealed three themes: teaching and learning challenges, the burden of environmental code-switching, and deficient intercultural socialisation as a result of missed experiences. Overall, results and findings show that some virtual student mobility programs were perceived as a concrete challenge, disappointment, and inadequate learning experience for Erasmus students. The results also challenge the purported inclusiveness of virtual student mobility programs. The paper concludes with the need to reconsider virtual student mobility as inclusive internationalisation, and offers concrete implications for policy, practice, and research.

Experiences of the Migrant Farmworkers during the Syndemic Due to COVID-19 in Spain

The present article addresses the COVID-19 syndemic, that is, the interaction of SARS-CoV-2 with other diseases that interact and are determined by patterns of social inequality. The living and working conditions of migrant farmworkers increases the transmission of COVID-19. Descriptions of the experiences of migrant farmworkers provided by the professionals from different organizations that tend to them allowed the authors to discover the syndical nature of COVID-19. This study is based on qualitative descriptive research. Seventeen workers from different organizations participated in the study, through in-depth interviews between January and June 2022. A thematic analysis was performed to analyze the qualitative data. Two main themes emerged: Non-compliance with the collective labor agreement, and non-compliance with workplace health and safety standards. The results suggest that the adverse living and working conditions of the migrant farmworkers increased their risk of COVID-19 infection, due to the lack of compliance with the health measures decreed. The vulnerability experienced by migrant farmworkers increased work conflicts and prompted their mobilization to fight for their rights. © 2023 by the authors.

What we have learned from adult students' online learning experiences to enhance online learning of other students' groups?

Adults used to be the largest online student population before the COVID-19 pandemic. However, the number of online students multiplied during the pandemic, and now includes the complete conglomeration of all student groups. Due to their longer experience of online education, adult students continue to provide valuable insights on how to enhance online learning for other higher education students. This article reports the results of phenomenographic research on the qualitative differences in the ways of experiencing learning by fifteen adult students enrolled in two online postgraduate programmes. The analysis on in-depth, participant-led interviews demonstrated that online learning is conceptualised in three ways: as an investment, as a process that brings structure, and as a process that enables and empowers an individual. The results of this study are of particular importance for those who are concerned with introducing online learning to the higher education curricula. The paper argues that the stigma of online education being the second choice, maintained in the educational research literature, should be replaced by a holistic approach to education as a process that organically incorporates the online educational elements into higher education. Focusing on how adult students experience online learning provides a broader and deeper understanding of adopted effective practices and the variety of online learning opportunities and outcomes for other students' groups. Insights based on the results of this study are summarised. © 2024, Asia-Pacific Society for Computers in Education. All rights reserved.

All hands on deck: exploring how Latinx families in California supported child learning during the initial Covid-19 shutdown

This study focuses on family perspectives of school and home-based learning during the early months of the Covid-19 pandemic, revealing both what is lost and gained as a result of families being more intimately involved in the academic training of their children. Through the use of qualitative interviews, researchers found that parents (1) addressed challenges related to virtual learning on their own, (2) actively guided their children's learning journeys and (3) engaged in collective efforts to ensure the well-being of their children. These findings suggest that as the school systems responded to the pandemic and home became a site of academic learning, the home also became a site of everyday ingenuity as parents applied a kind of pedagogical improvisation and accessed funds of knowledge to design learning spaces and scheduling frameworks. [ FROM AUTHOR] Copyright of Journal of Family Studies is the property of Routledge and its content may not be copied or emailed to multiple sites or posted to a listserv without the copyright holder's express written permission. However, users may print, download, or email articles for individual use. This may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full . (Copyright applies to all s.)

Adaptive reuse of closed malls for dementia programs and services: Community focus group feedback

The double societal hit of dementia and infectious disease outbreaks like COVID-19 have raised a convergence of concerns for the future of care settings for people living with dementia. Images of institutionalized older adults who are quarantined in closed settings have led developers, government agencies, and care administrators to search for innovative options to create more autonomy and quality of life in care settings while protecting the health of residents. This chapter describes the qualitative work being conducted by a Midwestern university research team, laying the groundwork for the conceptual adaptive reuse of an 800,000 square-foot closed mall site for centralized dementia programs, services, housing, and an on-site quarantine and medical center. Focus group outcomes from architects and developers highlighted five principle themes relating to the barriers and benefits of adaptive reuse for this model which include: mixed-use precedents, linking the old with the new, economic factors, development partnerships, and sustainable building practices. (PsycInfo Database Record (c) 2023 APA, all rights reserved)

Barriers to in-Person Focus Group Participation during the Third-Year of COVID-19 Pandemic: A Case Study of Colorectal Cancer (CRC) Screening in Underrepresented Groups

Objectives: In the process of conducting research to understand barriers to colorectal cancer (CRC) screening in underrepresented groups such as Blacks and Hispanics, it became evident that there were also barriers to recruitment in this population. This study assesses the challenges faced in recruitment of focus group participants regarding CRC screening practices among underrepresented groups. Since the COVID-19 pandemic, qualitative research participants have primarily been interviewed through online video or audio interactions. However, as restrictions on in-person interactions have been lifted, in-person focus groups are being increasingly considered. Method(s): The study investigators began recruitment through community health workers in August 2022, when COVID-19 vaccines were available for all adults (age>18 years). Eligible individuals were: age 45-75, Black or Hispanic, with Medicaid or no insurance, and no family history of CRC or diagnosis of certain colon-related diseases. We combined in-person and virtual recruitment strategies, including posting flyers in communities, advertising our study at health fairs, and on social media. Participants would receive a $50 gift card. Result(s): Fifty-five met the eligibility criteria among 144 respondents, and 45 subjects (29 women and 16 men) agreed to be contacted. An average of 2.5 attempts were made per eligible subject. Unfortunately, we were able to recruit only four women (3 Hispanic and one non-Hispanic black). Traveling to the research site was a barrier to participation. Many subjects (49%) requested virtual participation (online video or audio interactions);some declined because the topic was too sensitive (considered taboo), and eligible men were reluctant to participate in-person. Conclusion(s): The requirement of in-person participation affected our recruitment goals, suggesting that COVID-19 has shifted the preferences of research participants to virtual interaction. In response to the eligible participant preferences, the study protocol has been revised to re-contact patients and schedule virtual FG sessions.Copyright © 2023

A Qualitative Study Exploring the Impact of Covid-19 Pandemic on Teaching and Learning of Family Medicine Course among Undergraduates in a Local University in Malaysia

Introduction: The COVID-19 pandemic significantly impacted the global teaching and learning process (TnL). Unfortunately, to date, not many qualitative studies have been published specifically on the impact of COVID-19 on the Family Medicine course, particularly in Malaysia. Hence, this study aimed to explore the impact of COVID-19 pandemic on the teaching and learning experience of undergraduate students undergoing their Family Medicine course at a local university. Methods: A qualitative study using focused group discussion (FGD), was conducted among undergraduate students during the lockdown period. A semi-structured interview guide was used to interview 20 students, in their fifth undergraduate year, undertaking their fourth to fifth week of a total six-week course. They were selected using purposive snowball sampling method. There were four focus group discussions (FGD) with five students in a group. All interviews were audio-taped, transcribed verbatim, and the contents were analysed using the standard content analysis framework. Subsequently, thematic content analysis was conducted, and three major themes were produced. Results: The three major themes were (1) facilitators to learning, (2) barriers to learning, and (3) rooms for improvement. Conclusion: Although COVID-19 pandemic had significant impact on TnL of Family Medicine course among undergraduates, the students remained optimistic and proposed some improvement from their point of view. However, a creative, realistic, effective, and impactful way of TnL, particularly in clinical aspects should be developed and experimented. Technological progress and advancement should permit this idea to be achievable and implemented in near future. [ FROM AUTHOR] Copyright of Malaysian Journal of Medicine & Health Sciences is the property of Universiti Putra Malaysia and its content may not be copied or emailed to multiple sites or posted to a listserv without the copyright holder's express written permission. However, users may print, download, or email articles for individual use. This may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full . (Copyright applies to all s.)

Global representations of international students in a time of crisis: A qualitative analysis of Twitter data during COVID-19

International students have been historically valued by universities for their contributions to their host countries. Yet, representations of international students in the general public have become increasingly mixed, an issue likely exacerbated by COVID-19, which has shown increased hostility towards international students. Given the increased reports of discrimination during this period, there is ongoing need to understand how international students have been represented in this specific time of crisis. Our study analysed public representations of international students through Twitter data and qualitative analysis of 6,501 posts made during the immediate COVID-19 crisis (January-April 2020). Our findings confirm competing public representations of international students that changed over time: initially through stereotyping and depictions as assumed disease carriers, shifting to empathy and support after university campus closures. We also outline themes of racism and discrimination, which are of importance for the global higher education sector as we move into a post-COVID world.

Post-Lockdown Behaviors and Impacts of Avoiding COVID-19 in Individuals and Caregivers of Individuals at High-Risk of Severe COVID-19: A Qualitative Study

Objectives: Several populations are at greater risk of severe COVID-19 due to inadequate responses to COVID-19 vaccines. Many of these individuals, and their caregivers, continue practicing varying degrees of social isolation to avoid SARS-CoV-2 infection. Following the end of lockdowns, the behaviors and impacts of continued isolation on the quality-of-life of high-risk populations remain poorly understood. This study describes the main avoidance and protective behaviors and ongoing impacts experienced by adults and caregivers of adults at high-risk of severe COVID-19. Method(s): Four virtual focus groups (April-July 2022) were conducted with individuals at high-risk of severe COVID-19, or caregivers, recruited via a convenience sample from patient panels. A discussion guide of open-ended questions was prepared based on COVID-19 guidance documents and a literature review. For qualitative analyses, an inductive approach was used for behaviors, deductive for impacts. A pre-defined codebook was updated throughout as needed. Salient concepts were defined as those mentioned by >=30% of participants or in every focus-group session. Result(s): Fourteen participants were interviewed (12 patients, 2 caregivers). Participants highlighted continued behaviors greatly impacting their quality-of-life. Avoidance behaviors (staying home, avoiding bystanders, avoiding shopping facilities and gatherings, using delivery services, family protection [43%-64%]) and protective behaviors (masking [79%], vaccination [57%]) were reported. Negative impacts included family relationship impacts (71%), collapse of social relationships (57%), difficulties accessing healthcare (43%), anxiety, fear, loneliness and depression (36%-50%), and impacts on employment/finances (36%). Positive impacts included the advent of telehealth (57%) and recognizing family importance (36%). Lack of trust in authority (57%) and hoarding of medications (36%) were negative general impacts of the COVID-19 pandemic highlighted. Concepts reported by patients and caregivers were similar. Conclusion(s): Individuals at high-risk of severe COVID-19 and their caregivers maintained avoidance and protective behaviors similar to those reported during lockdowns. This study highlights the continued burden experienced by high-risk populations.Copyright © 2023

Building Research Capacity in Primary Care Practices That Serve Predominantly Racial and Ethnic Minority Populations

In this commentary, we report on lessons learned over 2 years (2020-2022) from conducting primary care research through a novel alliance of an ACO consisting of independent practices, a health plan, and several academic researchers, with the support of a private foundation. Am J Manag Care. 2023;29(6):In Press _____ Takeaway Points The process of collaborating on research was mutually beneficial for a network of independent practices and a group of academic researchers. * The process benefited the practices by facilitating more precise thinking about quality improvement, motivating the staff, and enabling readiness for health system change. * The process benefited the researchers by illuminating nuances of clinical and organizational workflow and revealing the practices' in-depth understanding of the communities they serve. * If practices have more federally funded opportunities to consistently participate in research, it could help speed greater adoption of payment reform models to promote health equity at the state and national levels. _____ A 2021 National Academies of Sciences, Engineering, and Medicine report, Implementing High-Quality Primary Care, has called out the persistent "neglect of basic primary care research" in the United States.1 A 2020 study by the RAND Corporation found that primary care research represents only 1% of all federally funded projects (including projects funded by the National Institutes of Health, the Agency for Healthcare Research and Quality [AHRQ], and the Veterans Health Administration).2 However, innovation in primary care is central to advancing health care delivery. Leaders in health care innovation recently called for CMS to test a proposal for primary care payment reform in accountable care organizations (ACOs) composed of independent practices (ie, practices not owned by hospitals).3 By innovating in independent practices, these leaders argued that CMS would provide incentives for those practices to stay independent, thereby potentially decreasing the vertical market consolidation that contributes to rising health care costs.3 Yet these same practices may have less experience with the kind of systematic innovation that leads to generalizable insights, because what little funding is available for primary care research is mostly awarded to large academic medical centers.1 AHRQ's practice-based research networks have not fully addressed this gap, as they have struggled to find infrastructure and maintain funding.1 In this commentary, we report on the lessons we learned over 2 years (2020-2022) from conducting primary care research through a novel alliance of an ACO consisting of independent practices, a health plan, and several academic researchers, with the support of a private foundation. [...]ACPNY found that experience with research facilitates innovation and readiness for health system change (lesson 1C).

Research in a Closed Political Context, COVID, and Across Languages: Methodological Lessons, Messages, and Ideas

This study offers a number of contemporary qualitative and mixed methods research lessons regarding cross-language research and research in closed social and political contexts such as post-Soviet countries, especially how such research may be adapted to disruptions like those posed by the COVID pandemic or other disasters. The lessons draw from a study of policy learning among government officials in Kazakhstan which illustrated several methodological strengths and weaknesses and generated a number of methodological recommendations. In particular, while the literature on best practices for research in closed contexts emphasizes deep interactions to develop trust, the COVID pandemic and other disruptions may force researchers to transition to online modalities and constrain options. We suggest strategies to overcome these limitations, including supplementing findings from interviews with content analysis or other multimethod approaches. Additionally, we argue that researchers in post-Soviet and post-colonial contexts must be particularly attuned to the challenges of cross-language research and the combination of local languages with the language of the colonial power. These lessons hold relevance for researchers working in a variety of contexts as they conduct research during times of disasters and geopolitical instability. [ FROM AUTHOR] Copyright of International Journal of Qualitative Methods is the property of Sage Publications Inc. and its content may not be copied or emailed to multiple sites or posted to a listserv without the copyright holder's express written permission. However, users may print, download, or email articles for individual use. This may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full . (Copyright applies to all s.)